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Blog 2011
- What to eat...or not to eat, that is the question!
- Drink for us little man!
- I'm doing just fine!
- Dear Tayden...
- Feed me mom!
- What's up with our little man?
- Dearest Tayden
- The Mic key is reinserted
- A major infection
- Another day of no progress
- A bad 2 weeks but much better now!
- A new record!
- Dairy allergy back?
- Slow Steady Progress!
- 3 Already!
- Tay's Timing
- Getting to be a big boy now!
- Green Jelly! Not red!!!!!!
- Assessment went well!
- Tay is the BOMB!
- Holiday Time!
- GRAZ PHOTOS
- Blog 2012
- Blog 2013
- Blog 2015
Treatment for Tayden
I love any kind of water
It's just amazing to know that in this day and age, almost anything is possible. If you had told us two weeks ago about a children's hospital in Graz, Austria that has a program designed to help children like Tayden starting eating and drinking independently, I would probably not have believed you.
The hospital where Tayden is headed to in Austria is called the Children's Univeristy Hospital. They really seem to be doing amazing work there - they have cured more than 700 children worlwide and sent them home eating, that is truly amesome! They have even started doing courses via the internet and though still in the early stages, the results here have been very encrouaging. For further info, see www.notube.at
As mentioned, as a result of being fed through his feeding peg for so long, Tayden has developed Feeding Tube Dependency and has forgotten how to eat and drink on his own, like any other child his age.
Tayden's treatment will involve a three week course consisting of many different categories and specialities working together as a unit to encourage him to start eating and drinking again. In fact, he has to learn from scratch how to eat and drink. The staff consists of many highly skilled professors and doctors in Paediatrics, as well as Occupational Therapists, Speech Therapists, pysiotherapists and even a pyschologist, among others.
In the mornings the children attend their different therapies (based on their specific needs as determined by the staff) where they are guided, assisted and encouraged in each session type to achieve the specific objectives set for the day. At 12:00 each day there is a picnic lunch which the children share together - seeing other children eat and interacting on a social level is very important.
Many afternoons are seen as family time and families are encouraged to explore the town and area, doing the normal things that a family would - having dinner at a local restaurant, going somewhere for tea, packing a picnic basket and heading to a park...all in the name of therapy. Each bite, each swallow is seen as progress and much joy evident as the children start to progress.
It sounds, in essence, so simple, so easy but we know from sitting with a toddler who for the last 10 months who eats a couple of teaspoons a day (in anything!) and hasn't been drinking at all, that getting them to eat and drink is not an easy task.
We have been warned that it is extremely stressful for the families involved and they are encouraged to travel together and visit the clinic as a unit, rather than just the child with one parent - in fact, more than 80% children treated have both parents and/or extended family with them during their 3wk hospital stint.
The objective is, that by the end of the 3 week period, Tayden will be able to eat and drink independently and no longer have to reply on his feeding tube for nourishment. What an awesome thought and we look forward to that day!
Tayden has been accepted onto the program and his treatment commences on the 10th October 2010 - all we need to do is get there now!
The hospital where Tayden is headed to in Austria is called the Children's Univeristy Hospital. They really seem to be doing amazing work there - they have cured more than 700 children worlwide and sent them home eating, that is truly amesome! They have even started doing courses via the internet and though still in the early stages, the results here have been very encrouaging. For further info, see www.notube.at
As mentioned, as a result of being fed through his feeding peg for so long, Tayden has developed Feeding Tube Dependency and has forgotten how to eat and drink on his own, like any other child his age.
Tayden's treatment will involve a three week course consisting of many different categories and specialities working together as a unit to encourage him to start eating and drinking again. In fact, he has to learn from scratch how to eat and drink. The staff consists of many highly skilled professors and doctors in Paediatrics, as well as Occupational Therapists, Speech Therapists, pysiotherapists and even a pyschologist, among others.
In the mornings the children attend their different therapies (based on their specific needs as determined by the staff) where they are guided, assisted and encouraged in each session type to achieve the specific objectives set for the day. At 12:00 each day there is a picnic lunch which the children share together - seeing other children eat and interacting on a social level is very important.
Many afternoons are seen as family time and families are encouraged to explore the town and area, doing the normal things that a family would - having dinner at a local restaurant, going somewhere for tea, packing a picnic basket and heading to a park...all in the name of therapy. Each bite, each swallow is seen as progress and much joy evident as the children start to progress.
It sounds, in essence, so simple, so easy but we know from sitting with a toddler who for the last 10 months who eats a couple of teaspoons a day (in anything!) and hasn't been drinking at all, that getting them to eat and drink is not an easy task.
We have been warned that it is extremely stressful for the families involved and they are encouraged to travel together and visit the clinic as a unit, rather than just the child with one parent - in fact, more than 80% children treated have both parents and/or extended family with them during their 3wk hospital stint.
The objective is, that by the end of the 3 week period, Tayden will be able to eat and drink independently and no longer have to reply on his feeding tube for nourishment. What an awesome thought and we look forward to that day!
Tayden has been accepted onto the program and his treatment commences on the 10th October 2010 - all we need to do is get there now!