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- Weaned & Home - Blog 2010
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Blog 2011
- What to eat...or not to eat, that is the question!
- Drink for us little man!
- I'm doing just fine!
- Dear Tayden...
- Feed me mom!
- What's up with our little man?
- Dearest Tayden
- The Mic key is reinserted
- A major infection
- Another day of no progress
- A bad 2 weeks but much better now!
- A new record!
- Dairy allergy back?
- Slow Steady Progress!
- 3 Already!
- Tay's Timing
- Getting to be a big boy now!
- Green Jelly! Not red!!!!!!
- Assessment went well!
- Tay is the BOMB!
- Holiday Time!
- GRAZ PHOTOS
- Blog 2012
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- Blog 2015
Feeding Tayden
Positioning of Tayden's feeding tube
Unlike “normal” children, Tayden does not eat or drink orally. In fact, he has not accepted a bottle of formula or anything else to drink since the 25th June 2009! Although he was fed and offered drinks all the time he, like many other peg fed babies, has forgotten how to eat and drink and needs to learn to do that again.
Tayden gets fed through a tiny tube in his tummy called a gastrostomy. Every 3-4 hours, Tayden gets fed his special dairy free formula (called gomma-gomma juice by our family so not to confuse him with the word milk since he is allergic to all dairy). He gets fed vegetables and meat (chicken or mince) or fish which are blended very fine to be able to fit through the syringe.
Tayden gets fed through a tiny tube in his tummy called a gastrostomy. Every 3-4 hours, Tayden gets fed his special dairy free formula (called gomma-gomma juice by our family so not to confuse him with the word milk since he is allergic to all dairy). He gets fed vegetables and meat (chicken or mince) or fish which are blended very fine to be able to fit through the syringe.
February 2010
We try to stimulate him orally by giving him food to chew on such as biltong, rusks, fruit and basically anything that doesn’t contain dairy. He loves sucking on biltong or droëwors, he is definitely a carnivore like his mom and dad but sadly doesn’t actually eat or swallow it, he simply sucks on it.
Tayden has forgotten how to eat and drink on his own. He has developed what is called Feeding Tube Dependency.
Tube dependency is a state of an unintended long period of time during which a young child has a feeding tube and thereby avoids learning to eat by natural ways.
Tayden therefore show active resistance and refusal behaviour to all attempts of food offering and other techniques aimed at becoming independent of the feeding tube and external nutritional regulation.
Tube dependency is a state of an unintended long period of time during which a young child has a feeding tube and thereby avoids learning to eat by natural ways.
Tayden therefore show active resistance and refusal behaviour to all attempts of food offering and other techniques aimed at becoming independent of the feeding tube and external nutritional regulation.